I think I have Meniere's disease
May 9, 2006 at 8:23 AM Thread Starter Post #1 of 10

Onix

Papá de Iñaki
Joined
Aug 19, 2001
Posts
3,271
Likes
97
About a month ago I had what seems to be an infection on the rigth ear, anounce by a ringing that just suddenly apeared when I was starting to feel better after a troath infection. I was like "whoa, my troath feels better," when the ringing started. I went to the doctor, she gave antibiotics, but the ringing never left. Then came the hearing loss, the sensation of something in my ear, vertigo, nausea and some memory loss. Some antibiotics injected to the muscles, some medicine for the vertigo, some antiinflamatory and ear drops. I am having some blood tests in a couple of days and then I'll go to the audiologist. I have to say that I wished I never decided to check on my sypmtoms on my own. The doctor said, "we have to check if it's Meniere's", and I was scared when she mentioned it. And then, I had to be dumb enough to check on it on the net. "Progressive," "no cure," "hearing loss." There was a point some days ago that when I woke up I had double vision for minutes and I was unable to use my hands. I am actually feeling physsically better, but putting my headphones on I can hear the ringing pervading all I hear. It's the first time in weeks I try to listen to some music and I just can't. I can't shake the feeling that this is the most anoying thing that could possibly happen to me, since I enjoy music so much on my cans. I try to think that there are more important things, like getting my house by the end of the month, being 38 years old and be able to have a family, like nobody expected me to do years ago. But I keep thinking, "why my ears, why my music."

When I was growing up, having problems with my mom after my dad died, or in school and my personal life, I found solace on my LP's and my father's old console. I discovered Led Zeppelin and Jimmi Hendrix the same day on that console, tuning the radio. And the music covered me. I had find a refuge. Today, I gave a friend a CD with live songs by the Alex Skolnick Trio. He mentioned some blips in it and gave me his headphones to check it out. I almost cried when I felt that warm sound coming to my ears after what seemed to be forever. But the ringing won't leave me. I feel like I am loosing my refuge, the only thing besides my family that can make me feel alive. I feel so screwed up. I feel I could give away an eye gladly instead of loosing my hearing.

Anyway, I have tried to refrain myself from posting about this, but if there's a place where someone can understand how I feel is here. On this matter, I really feel like I am on a deserted island. I truly feel screwed up.
 
May 9, 2006 at 10:00 AM Post #2 of 10
This is indeed extremely sad to hear, and I can understand your sadness. As one music-lover to another, I would be completely devastated as well if I was told that I can no longer enjoy music anymore.

And like you, I found solace in music through some of the worst times in my life, and I recoil in horror when I think about what would happen if music, one of the most important things in my life, would be denied to me.

I extend you my best wishes, and I will definitely pray for you. I hope you can find something else that can give you the same joy that music obviously gives to you, although I realize that it's extremely difficult to find the joy that music can provide. I sincerely hope that everything turns out well for you.
 
May 9, 2006 at 12:14 PM Post #3 of 10
Yea, really hope it's nothing that can't be cured.

EDIT:
Look on wikipedia, it says that a lot of things mimic Meniere's, and that if you do have it, there are two operations they can do to get rid of it, but if you do that, they have some other side affects.
 
May 9, 2006 at 12:46 PM Post #4 of 10
Please don't jump to conclusions. Wait till the test results and try to keep calm. I hope you feel better soon and I really hope you're wrong.
smily_headphones1.gif
 
May 9, 2006 at 4:04 PM Post #8 of 10
I hope you find out what's really going on when you visit the audiologist. People typically play out the worst case situation in their head when something unknown is going on. Until the tests are done, just try to stay positive and deal with the symptoms that you have now.

I know the ringing in the ear is very bothersome. I had fluid built up in my ears before. Constantly ringing, and you can hardly hear anything. I had to see a specialist also to get it corrected.

I hope this problem gets corrected for you. Report back with what you find out. Good luck!
 
May 9, 2006 at 4:19 PM Post #9 of 10
If it makes you feel better. I have had Meniere's diesease (I prefer to call it Labrynthitis) since 1995. (11 years) Yes, I have had my ups and downs. I did all the testing and all of them came back positive. NO there is no cure for it. NO you don't ALWAYS lose hearing. I hear fine in BOTH ears. I had punctured ear-drums when I was 9 years old due to a Q-tip accident and it healed. PM me and I will tell you all about it. Don't worry. It is not HALF as bad as it sounds.
http://www.wrongdiagnosis.com/l/labrynthitis/intro.htm
http://cureresearch.com/l/labrynthitis/intro.htm
http://www.healthypages.net/forum/tm.asp?m=181388

http://oto.wustl.edu/men/
http://www.menieresinfo.com/
http://oto.wustl.edu/men/mn1.htm
http://www.entnet.org/healthinfo/balance/meniere.cfm
 

Users who are viewing this thread

Back
Top