Thanks. Yeah, I can imagine it sucking. RA is the main study I work with, but incidentally, the other one is MS. Even though I've worked with them for a while now, and I've been to seminars and so on, I still know little to nothing about them. The MS one is newer and needs less work from a data point of view, so I haven't had to do a lot with it, some fixes and glitches here and there. Are they related somehow?
We know so little about MS, and most autoimmune conditions, that it's hard to say. One modern theory is that having one AI condition makes a person vulnerable to acquiring others. Also, I've noticed a flare-up of one can induce the other to flare, what I not-so-affectionately refer to as "AI-DP" (no, I'm not going to explain what "DP" means out in public, but anyone who's seen any pr0n knows what I'm talking about). However, it does feel like you're somehow getting "banged" from two different sides, with one disease aggravating the other. My old rheumatologist was a useless putz and didn't seem to like keeping up with new developments in research, several times I actually printed out information for my visits so he could read about new drugs and therapies, because I knew he'd never do it on his own. My new one is awesome, she studies all the latest journals and research and is much more open to new ideas and opinions. Having a doctor who is completely dedicated to patient care, and improving your health, makes all the difference in the world. That may sound a little obvious, but I'm often shocked at how many MDs don't seem to be.
Edited by Magick Man - 11/28/13 at 10:04am