Once again, thanks to all for your concerned and humane comments. I'm going to express of couple of thoughts related to these medical issues but it wasn't my intention to become the resident expert on chronic medical problems. However, I brought it up in response to suggestions about meets and Can Jams, etc., so receiving responses along these lines isn't surprising and is actually rather uplifting. Your responses speak very well of the type of people represented at Head-Fi.org. I think I made the right choice signing up here.
Anyway, I've been through the surgical analysis process several times and have been "rescued" from making a decision by sudden remissinons at the exact points at which I was about to choose surgury. Some of the remissions have lasted quite a while, others lasted only a few weeks. The current one is going on about 1 year now, with control being the residuary issue. I've been told that symptoms, especially pain, are resolved by surgury. This I understand very clearly. But there are other issues such as inflammation at the stoma, irritation of the surruonding skin, escape of odor, undesirable noises, etc. I know these things because I know and knew people with ostomies. But the rectal and abdominal pain would certainly resolve and the colonic malignancy risk would be largely eliminated (not completely bacause not absolutely all tissue is removed). Obviously, control, once the absorption issue settled down, would also resolve as there wouldn't be any further passing of material rectally. Some form of modified J-pouch is what has been recommended and that's what I would choose if the next flare became unbearable or displasia is found on subsequent biopsy.
Regarding a couple of other points, my current gastroenterology team is headed by the chiefs of inflammatory bowel disease at Hopkins and U.Penn. in Philly. Both have advised that Enbrel is not effective for my indications. Humira is a definite choice but carries the same malignancy and TB risks as Remicade and is also less effective, particularly in severe disease. Nervertheless, prior to choosing surgery at the next severe flare-up, the plan is to employ Humira. Past the rectum, the colon has not been severely inflammed for about two years. The sigmoid was the last part to heal and showed moderate inflammation during the last year of the last severe flare-up, the one that lasted 4 years. But the peri-anal fistula and the severity of disease in the rectum is what convinced these physicians that it's "Crohn's vs. Colitis" rather than uniquely either disease.
Finally, I didn't actually have Stevens-Johnson. I was well along the path to it, but never got there. If I remember, there are 4 stages to rash and SJS is stage 4. SJS is like burning up in your own skin. I have seen photos of victims whose eyes seemed to have melted out of their sockets and skin burned off most of their bodies, as if in a fire. These people also commonly suffer brain and multi-organ damage. The survival rate for genuine SJS is low. Once a rash starts to enter stage 3, which is where I was, the chances that the underlying medication reaction will uncontrollably lead to SJS are vastly increased and that's why the episode was so scary. It's an amazing thing to see or experience. The rash starts innocently as a few pink/red dots. Then the dots start extending lines out to connect each other. Then the lines and dots fill out to become blotches. Then the blotches start connecting to each other. Then it spreads to both sides of the diaphram. and so on. The rash finally stopped when my skin was beet red over more than 95% of my entire body, from scalp to toes, accompanied by high fever. As I understand it, what was happening to me outside was also happening on the inside, to my organs and connective tissues. Just extend this scenario to inflammation that virtually incinerates skin and tissue, add a fever something like 106-8 or maybe more and that's SJS. Perhaps some of the "myths" of so-called "spontaneous combustion" of people were really stories of SJS. Most of the low number of survivors are permanently brain damaged and disfigured. No. I never got that far. To the commenter who mentioned a brother with SJS, I can only say that surviving true SJS without brain damage or disfigurement is a blessing from heaven. I hope that describes your brother's outcome. You and he are truly fortunate to still be in each other's company. BTW - As I also understand it, SJS is not limited to reactions from NSAIDS and sulfa drugs though I have read about SJS with these drugs and perhaps is more common with them than some others.
In conclusion, I've been looking around this site to find information and to see where I might usefully contribute. There are one or two places where I might have a useful thought or two to contribute and I hope to be able to do so. Mostly, though, the wealth of knowledge and experience possessed by others here is far greater than mine. So I'm not going to be presumptuous and simply cough up the first things that enter my head. As far a meets and Can Jams are concerned, I think it would be interesting and fun to try these out from time to time and I also hope to be up to doing that. I would very much enjoy meeting some of the thoughful and considerate people who've commented here. So, if a bad situation like my experience with Warren Audio and Rick Warren ultimately brings me these benefits, then that's a pretty good outcome (and I don't even know what PayPal is going to do with my claim).
I've been thinking about maybe adding a balanced tube amp to my set up sometime during the coming year or so. For balanced use, I've only found the WA22 at Woo Audio. Also, I'm just starting to research what kind of DAC to use with a tube amp. Where do you folks think are the best places to look here for useful information on these issues? There are literally thousands of threads/posts about tube amps, etc., but as I started reading, many seemed off the points in which I was interested and some just seemed to wander off into never-never land. This isn't the right thread for such a discussion. But I'd appreciate some guidance on starting my search elsewhere in this forum.